Pacer's National
www Links
For more resources and links visit Parent Advocacy
Coalition for Educational Rights (PACER) Center. Here you will find a lot
of links to organizations around the country
Similar sites on
disability are listed in: Snap Directory Lifestyle: Communities: People With Disabilities:
Organizations
Disability
Resources, inc.
"The Disability Resources Monthly (DRM) Guide
to Disability Resources on the Internet,"the award-winning gateway to the
best disability information online, is improving its technical
capabilities and exploring new ways to help people with disabilities,
family members, and service providers find the best information online
quickly and easily.
The Internet Resources are listed in Alphabetical
Order.
Ability Network Magazine
A disability-oriented
magazine with articles authored, for the most part, by people with
disabilities.
Able Generation
We manufacture pediatric
therapeutic furniture for children with special needs. Our Mission is to
provide products that support your efforts to integrate your child into
everyday life. Our focus is upon early intervention for children with mild
to moderate involvement. Our products are constructed of durable wood, and
thus may be passed from child to child.
ADD Association (National
Attention Dificit Disorder Association)
ADDA's mission is to
help people with ADD lead happier, more successful lives through
education, research, and public advocacy. Whether you have ADD yourself,
or someone special in your life does, or you treat, counsel, or teach
those who do, ADDA is an organization for you. ADDA is especially focused
on the needs of ADDults and young adults with ADD. Parents of children
with ADD are also welcome!
Alexander Graham Bell Association for the Deaf and Hard
of Hearing (AG Bell)
It is an international membership
organization comprised of parents of children who are deaf and hard of
hearing, adults with hearing loss, and professionals who serve children
with hearing loss. AG Bell was founded in 1890 by Alexander Graham Bell as
an information provider and support network . AG Bell is the largest
organization in the US focused on the needs of hearing impaired children
who use auditory approaches to communicate. The Association also addresses
a range of issues of importance to people with hearing loss of all ages.
The American
Association of Mental Retardation (AAMR)
We've prepared an
on-line resource that will augment our activities and give you rapid
access to information about the mental retardation and disabilities
field.
The Arc (A National Organization on Mental
Retardation)
he Arc's book, All Kids Count: Child Care and the
Americans with Disabilities Act (ADA), is a guide to inform the child care
industry about the ADA and to help child care providers realize the
importance and value of including all children in regular child care
settings. This publication outlines accommodations that can facilitate
including children with a wide range of disabilities in early childhood
programs. The Arc's Web site contains many full-text documents on working
with children with disabilities, information on specific disabilities, and
information in both Spanish and English on the ADA as it relates to child
care.
Association of Service Providers Implementing IDEA
Reforms in Education Partnership (ASPIIRE)
American Printing House for
the Blind
Provides materials, alternative media, tools, and
resources for individuals who are blind or visually impaired.
Autism Network
International
This is an autistic-run self-help and advocacy
organization for autistic people
Autism-PDD Resources
Network
Parents with autistic children will find a number of
helpful resources and tools here. In edition to diagnosis and treatment
information, there is a handy table of links for adults with disabilities.
The site also includes an index by state of K-12 schools for children with
learning disabilities( no information is provided for some states), guides
to special education and Social Security benefits and a library of
articles about autism.
Autism Resources-1
Offers information and
links regarding the developmental disabilities, Autism and Asprger's
syndrome.
Autism Resources-2
Visit this site, click your
state on the U.S.map and you will be presented with a list of links to
local protection and advocacy organization, social groups, educational
resources, developmental disability planning council, vocational
rehabilitation centers, state insurance departments and organizations that
provide parent training. Also included are links to national organizations
and resources. Some information is available in Spanish.
Autism Society of
America
Serves the needs of individuals with autism and their
families through advocacy, education, public awareness, and
research.
Axis
Disability Rights
This site contains articles on inclusion and
disability, as well as other progressive resources.
Autistic
kids
The mission of Autistic Kids is to provide information on
products, services, and other resources for families of autistic children
of all ages. It is our intent to provide relevant informaiton you can use
right away. We strive to include timely articles, product and service
links, school contact information, and updates on the ever-changing laws
that effect the lives of our families.
Beach
Center
Center of the University of Kansas that provides
support to families who have members with Disabilities. Features Facts
sheets and links to Resources.
Brain
InjuryInformation
Information on brain injury and other special
needs in children and adolescents. We have recently added lots of
information to make our site a central resource on acquired brain injury
that is accessible to families, educators and clinicians.
Captioned Media Program (CMP)
If you have a
student to child who is deaf or hard of hearing, the Captioned Media
Program (CMP) can help with video resources. The program provides
free-loan, open-captioned videos to deaf and hard of hearing persons. Over
4000 titles are available. You may also call them toll-free at
1-800-237-6213.
CHADD (Children and Adults with Attention Deficit
Disorder)
CHADD v the national non-profit organization
representing children and adults with attention-deficit/hyperactivity
disorder (AD/HD).
Children's Defense Fund
The mission of the
Children's Defense Fund is to Leave No Child Behind? and to ensure every
child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a
Moral Start in life and successful passage to adulthood with the help of
caring families and communities.
Cleft Palate
Foundation
Information for families through education,
research, support, and facilitation of family-centered care.
Children's
Foundation(CF)
CF produced Yes You Can Do It! Caring for
Infants and Toddlers with Disabilities in Family Child Care, a videotape
and resource directory for working specifically with infants and toddlers
with disabilities in family child care, but with useful information
applicable across ages and settings. The video highlights benefits of
inclusion to the child, parent, child care provider, and the other
children in care; and the Annotated Resource Directory contains training
curricula and materials, national and community resources, books, videos,
fact sheets, and a list of support organizations for providers and parents
to help them better care for young children with disabilities.
Coalition for
Healthier Cities and Communities
Here Grassroots organizations
can share ideas ans programs to improve the wellbeing of
families.
Consortium for Citizens with Disabilities
A
coalition of national disability organizations working together to
advocate for national public policy that ensure the self-determination,
independence, empowerment, integration, and inclusion of children and
adults with disabilities in all aspects of society.
Consortium on Inclusive School Practices
The
Consortium is a 5-year project funded by the U. S. Department of
Education, Office of Special Education Programs, to Allegheny University
of the Health Sciences, Allegheny Campus. Participants include Child and
Family Studies Program of Allegheny University of the Health Sciences,
Allegheny Campus, with subcontracts to San Diego State University, the
National Association of State Boards of Education, and the University of
Montana.
Council for Exceptional Children (CEC)
This
membership organization works to improve educational outcomes for
individuals with exceptionalities. CEC publishes special education
literature and produces a biannual catalog of materials for parents and
professionals. TEACHING Exceptional Children is CEC's bimonthly periodical
featuring information on working with children with disabilities in the
classroom. For example, the Spring 1996 issue includes a series of
articles highlighting the social benefits of inclusive programs for young
children. A process for planning for inclusion and strategies to enhance
social interactions are outlined.
Deaf Dude's Deaf links
DB-Link
A federally funded information
clearinghouse focused on identifying, coordinating, and disseminating
information related to children (0-21) who are deaf-blind.
Disability is
Natural
Are you ready for a change? Ready for some good news
about people with disabilities? Check out a new way of thinking.
Division of Services for
Children with Special Health Needs (DSCSHN)
Promotes a
comprehensive system of family-centered, culturally competent,
community-based care for children with special health care needs (CSHCN)
who are approaching adulthood and may need assistance in making the
transition from pediatric to adult health care and to post-secondary
education and/or employment.
Disability
is a compilation of special
education information from numerous federal organizations into one
comprehensive site. It offersstudents, teachers and parents resources for
every area of special education, ranging from information on IDEA to help
on transition from eduation to employment.
Deaf Dude's Deaf links
Division for Early
Childhood (DEC) of the Council for Exception Children (CEC)
The
Division for Early Childhood (DEC) of the Council for Exceptional Children
(CEC) is a nonprofit organization advocating for individuals who work with
or on behalf of children with special needs, birth through age 8, and
their families. Founded In 1973, the DEC is dedicated to promoting
policies and practices that support families and enhance the optimal
development of children. Children with special needs include those who
have disabilities, developmental delays, are gifted/talented, and are at
risk of future developmental problems.
Easter Seal Society of Washington
Site
includes links to camps, assistive technology and other
programs.
Exceptional Parent Magazine
Provides
Information, support, ideas, encouragment and out reach for parents and
families with disabilities and the professionals who work with them.
Epilepsy Foundation
of America
Phone: (800) 332-4050
The Epilepsy Foundation
(formerly the Epilepsy Foundation of America)? is the national
organization that works for people affected by seizures through research,
education, advocacy and service. We are an organization of volunteers
committed to the prevention and cure of epilepsy and a positive quality of
life for everyone who lives with seizure disorders.
The Ethel Louise Armstrong
(ELA)
ElA support individuals with disabilities and
organizations that work with people with disabilities through education,
health care issues and the arts, Provides scholarships and
grants
FFRC - Families for Residential
Choices
Information and resources for adults living with
developmental disabilities of brain injury and their families in their
efforts to create and sustain self-governed homes.
Family
Village
A virtual global community website that integrates
information, resources and communication opportunities on the Internet for
individuals with disabilities, their families and those who provide
services and supports.
Family Voices
"We are families from throughout
the United States who have children with special health needs. We are also
caregivers, professionals, and friends whose lives have been touched by
these children and their families. We are a diverse group, representing a
wide variety of children, health conditions, families, and
communities."
Federal Interagency Coordinating Council
The
FICC facilitates successful outcomes for young children with disabilities,
young children at risk for developing disabilities, and their families by:
developing interagency policies,coordinating fiscal resources, minimizing
fragementation and duplication,coordinating federal technical assistance
and support, and exemplifying partnership across federal
programs.
Federation for Children with Special
Needs
Organized in 1975 as a coalition of parent groups
representing children with a variety of disabilities, the Federation
operates a Parent Center which offers a variety of services to parents,
parent groups, and others who are concerned with children with special
needs.
GLADNET
The Global Applied Disability and
Information Network on Employment and Training, better known as GLADNET,
brings together research center, universities, enterprises, government
departments, and other groups for the promotion of research as well as the
collection, analysis and exchange of information concerning people with
disabilities and work.
Hearing and Hearing Disorders
Hearing
Resources
When my son was diagnosed with a hearing loss, very
little information was given to me. I have spent 5 years on-line and have
found some great information and support from many other parents. I want
to share this with you, and hope that you will start your journey better
informed than I was.
Hearing Speech and Deafness Center
HSDC is a
nationally unique, fully accredited independent agency offering a broad
array of services tailored to help people with a variety of communication
problems related to hearing loss and/or speech and language impairments.
Approximately 20% of our region's population is hard-of-hearing, speech
impaired or deaf. These people face challenges that affect them, their
families, friends and colleagues.
IILIAD:
IDEA Local Implementation by Local Administrators
Partnership
Inclusion Press Home Page
Inclusion Press is a
small independent press striving to produce readable, accessible,
user-friendly books and resources about full inclusion in school, work,
and community.
Inkspot
A comprehensive site that supports
writers of all skills and ages.
Institute on
Community Integration
"We believe that persons with
developmental disabilities should live as valued members of our
communities, receiving the services and supports they need to fully
develop their potential."
Institute on
Disability Culture
"People with disabilities have forged a
group identity. We share a common history of oppression and a common bond
of resilience. We generate art, music, literature, and other expression of
our lives, our culture, infused from our experience of
disability."
International Leadership Forum for Women with
Disabilities.
This a continuing information website. The
purpose of the forum is to create an international support network with an
emphasis on technical assistance for women with disabilities. This website
is enhanced with new information as it becomes available.
Internet Resources for
Special Children
Information and weblinks for parents,
educators, medical professionals.
Institute on
Independent Living
Institute website includes articles,
reports, announcements, peer support and advocacy, accessibility and
disability rights.
Kids Together
This non-profit organization,
co-founded by parents and organized by volunteers, supports the belief
that children with disabilities, like all children, have the need to
welcomed, cherished and embraced in our communities. This site is designed
to provide helpful information and resources to enhance the quality of
life for children and adults with disabilities, and communities as a
whole.
Kids As
Self Advocates (KASA)
WE WANT YOU to join Club KASA! We are
teens and young adults with special health care needs speaking on our own
behalf. Some of us may not have special health care needs, but maybe a
friend, brother or sister does and we care about them and want to learn
more about what it's like to have a special health care need. So, read up,
join in and pass it on!
Learning Disabilities
New website for
information about learning Disabilities.
Medical
Assistance Administration (MAA)
Comprehensive source for
information on eligibility, provider communications, medical policies,
Washington Administrative Codes, ets.Helps low-income people obtain
appropriate, quality health services.
Mental health
information and support.
Largest mental health website.
Comprehensive information-psychological disorders, medications, chat
rooms, support groups, journals, online psychological tests, more.
NARIC (The National Rehabilitation Information Center
)
A library & information center on disability and
rehabilitation.
National Association of Protection and Advocacy Systems
(NAPAS)
NAPAS is a national voluntary membership organization
for the federally mandated nationwide network of disability rights
agencies, protection & advocacy systems, and client assistant
programs.
National Association for the Education of Young Children
(NAEYC)
Directions to publications, resources, related sites,
etc.
National
Association of School Psychologists (NASP)
NAEYC has several
resources that provide background information on care for children with
disabilities. Two of these are Including Children with Special Needs in
Early Childhood Programs, a research monograph with articles addressing a
number of specific issues in planning and implementing appropriate
programs for children with disabilities; and A Place For Me: Including
Children with Special Needs in Early Care and Education Settings, a
descriptive summary of how inclusive programs for children should work.
National Center for
Learning Disabilities
Nationwide listing of schools, summer
programs, assessment and treatment centers, and parent support groups that
serve individuals with learning disabilities (LD) and their families.
Information about LD issues including legal rights, warning signs of
learning disabilities, and tips for parents and teachers.
National Center for Youth with Disabilities
An
information, policy and dissemination center for Youth with
Disabilities.
National Center to Improve Practice
(NCIP)
NCIP seeks to enhance educational outcomes for students
(preschool to grade 12) with cognitive, physical, sensory, and
socioemotional disabilities through technology, media, and
materials.
National Child Care Information Center
(NCCIC)
NCCIC activities include the dissemination of child
care information in response to requests from states, territories and
tribes, other policy makers, child care organizations, providers, the
business community, parents and the general public. Outreach to
Administration for Children and Families (ACF) child care grantees and the
broader child care community -via toll-free phone and fax and through mail
and electronic media -provide the following information and connections:
electronic networks and databases of clearinghouses and national
organizations, sources of child care funding, and of current research;
state, territorial, and tribal program activities; promising practices;
and other child care resources.
National Down Syndrome Society
The National
Down Syndrome Society was established in 1979 to ensure that all people
with Down syndrome have the opportunity to achieve their full potential in
community life. Since that time, this not-for-profit organization has
become the largest non-governmental supporter of Down syndrome research in
the United States. Today, NDSS continues to increase public awareness
about Down syndrome and discover its underlying causes through research,
education and advocacy.
The National Coalition for Parent Involvement in
Education (NCPIE)
NCPIE is dedicated to developing effective
family/school partnerships in schools throughout America.
National Conference
of State Legislatures (NCSL)
National Council on
Disability
This council is an independent federal agency making
recommendations to the President and Congress on issues affecting 54
million Americans with disabilities.
National Down Syndrome Society Website
A
comprehensive, on-line information source about Down syndrome.
National Early
Childhood Technical Assistance System (NECTAS)
Has information
and resources about federal programs for infants and toddlers with
disabilities and their families:
National Information Center of Deafness
Is a
centralized source of accurate, up-to-date, objective information on
topics dealing with deafness and hearing loss in the age group of
0-21.
National
Institute of Neurological Disorders and Stroke
The NINDS, an
agency of the U.S. Federal Government and a component of the National
Institutes of Health and the U.S. Public Health Service, is a lead agency
for the Congressionally designated Decade of the Brain, and the leading
supporter of biomedical research on disorders of the brain and nervous
system.
National
Organization on Disability
Promotes full and equal
participation of America's 54 million men, women and children with
disabilities in all aspects of life.
National Home of Your
Own Alliance
A partnership between the Federal government and
nationally recognized advocated and leaders whose goal is to create
housing and support opportunities that people choose and
control.
National
Information Center for Children & Youth with Disabilities
(NICHCY)
An national information and referral center that
provides information on disabilities and disability-related issues for
families, educators, and other professionals. Our special focus is
children and youth (birth to age 22).
National Parent Network on
Disabilities
Provides a presence and national voice for ALL
families of children, youth and adults with disabilities.
National Rehabilitation
Information Center (NARIC)
NARIC is a library and information
center on disability and rehabilitation, and collects and disseminated the
results of federally funded research project.
New Horizons for
Learning
Connect people to one another and to resources,
serving the worldwide Internet community by offering an expanded view of
teaching, learning, and developing intelligence more fully. Our activites
include publishing materials, producing conferences, consulting, and
collaborating on projects and programs.
New Mobility
Magazine
"Disability is news, art, politics, humor, healing,
recreation, travel, showbiz and rehab-biz, and that's what we
do."
On A Roll
The only commercial, syndicated
radio talk program for the disability community.
Oral Deaf
Education
Deaf children can learn to talk! The technology
available today through hearing aids and cochlear implants provides enough
access to sound that, with instruction at Oral Deaf Education Schools,
most deaf children can learn to talk.
OSERS/OSEP
(Offices of Special Education Programs)
Special Education
Publication and Related Resources web site.
Parent Advocacy Coalition for Educational Rights (PACER)
Center
PACER's mission is to improve and expand opportunities
that enhance the quality of life for children and young adults with all
disabilities - physical, mental, emotional, learning - and their
families.
Parenting with a Disability
This is a site
for consumers, parents and others interested in more information about
parents with disabilities, both cognitive and physical, parenting their
children. They offer a free newsletter. TLG has pioneered clinical and
supportive services, training and research serving families in which one
or more members - whether parent or child - has a disability or medical
issue. they are hosting the second International Conference for Parents
with Disabilities and their Families in 2001.
Policymakers
Partnership (PMP)
QuickLinks from Children's Hospital
Subscription toolkit about pediatric health , patient and
professional resources.
Regional Resource and Federal Centers
Network
The RRFC Network comprises the six Regional Resource
Centers (RRCs) for Special Education and the Federal Resource Center for
Special Education. The RRFC Network offers tools and strategies that
identify appropriate solutions for effective education and human services
delivery systems, serving all states and outlying jurisdictions. The six
RRCs are specifically funded to assist state education agencies in the
systemic improvement of education programs, practices, and policies that
affect children and youth with disabilities. The RRCs help states and U.S.
jurisdictions find integrated solutions, offering consultation,
information services, technical assistance, training, and product
development.
The Research and Training Center on Early Childhood
Development
The RTC is dedicated to promoting and enhancing
the healthy development of infants, toddlers, and preschoolers, with or at
risk for developmental delays or disabilities. The RTC was established to
create a bridge between research evidence and early childhood intervention
practices.
Society for Disability Studies
A nonprofit
scientific and educational organization established to promote
interdisciplinary research on humanistic and social scientific aspects of
disability and chronic illness.
Special Education
News
Special Education News answers a need for in-depth, timely
news related to educating students with disabilities.
The Special Needs
Network (SNN)
This Web site offers Department of Defense (DoD)
families with special medical and/or educational needs access to
information, resources, and each other. The SNN also provides information
to family service staff, care coordinators, other service providers, and
to DoD civilian employees
Speaking to write
Offers teachers and students
assistance on effectively using speech recognition technology, including a
tutorial CD, access to a discussion group, links to other on-line
resources and information on mastering the nuances of the program.
Special Education Resources (SERI)
A
comprehensive collection of resources of interest to those involved in the
fields related to Special Education. This collection exists in order to
make on-line Special Education resources more easily and readily available
in one location.
Special Education Legal Rights
Strategies
Special Education Legal Rights for Children with
Learning Disabilities, Attention Deficit Disorder, Autism, Down Syndrome
and More..
TASH
An international association of people
with disabilities, their family members, other advocates, and
professionals fighting for a society in which inclusion of all people in
all aspects of society is the norm.
Through the Looking
Glass (TLG)
A community non-profit organization which emerged
from the disability independent living movement in 1982. TLG has pioneered
clinical and supportive services, training and research serving families
in which one or more members--whether parent or child--has a disability or
medical issue.
TRACE Research and Development Center
Trace is
a non-profit research center that focuses on making computer and
information technologies more accessible to everyone.
Training Resource Network
(TRN)
Offering resources on the full inclusion of persons with
disabilities in their communities, especially on the topics of supported
employment, person-centered planning, supported living, and
self-determination.
The Autism Society of America
Promotes
lifelong access and opportunities for persons within the autism spectrum
and their families, to be fully included, participating members of their
communities through advocacy, public awareness, education, and research
related to autism.
The Oaks Group
The Oaks Group is a value based
stakeholder organization of parents, consumers, advocates, educators,
service providers, and other professionals who believe persons with
developmental disabilities should be fully included in the mainstream of
community life, that children should have the opportunity to grow up in
families, and adults should receive supports and services to help them
live as close as possible to the way people without developmental
disabilities live.
Transition
Information on transition and
planning. Model Site by the National Transition Network and Western
NAtional Resource Center.
The U.S.
Department of Education
United Cerebral Palsy National Homepage
As the
second largest health charity in America, United Cerebral Palsy's mission
is to advance the independence, productivity and full citizenship of
people with cerebral palsy and other disabilities, through our commitment
to the principles of independence, inclusion and self-determination.
Waterway to
the Great Outdoors.
Information about adaptive kayaking and how
it is giving more people the chance to enjoy the water sports and
experience nature.
WebABLE
WebABLE is a directory for
disability-related Internet resources, including a searchable
accessibility database and calendar of events. The site features
information for people with visual, cognitive, hearing, mobility and other
impairments.
World
Institute on Disability (WID)
The World Institute on Disability
is a non-profit public policy center dedicated to the promotion of
independence and full inclusion in society of people with disabilities.
Wrightslaw
Parents, advocates, educators, and
attorneys come to Wrightslaw for accurate, up-to-date information about
effective advocacy for children with disabilities. You'll find hundreds of
articles, cases, newsletters, and other information about special
education law and advocacy in the Wrightslaw Libraries.